More Surgery

Monday, October 30

He's a fiesty little fellow....pulled his breathing tube out last night. It's back in and his arms are secured down with a blanket across his chest.

Off to get an MRI, MRA and MRV to try and understand what's going on in that little head of his, then off to get a drainage tube to help out with some of the accumulated fluid. His ventricles are blocked with part of the hemorrhage, so his spinal fluid is not draining correctly. The MRI/A/V did not reveal the reason for the hemorrhage, so we will keep looking. Some doctors seem to want a reason so that it can hopefully be fixed, others seem to want it to be inexplicable and something that will hopefully never happen again.

The Pediatric Neurologist joined the team today and gave us the encouraging news that the area of the brain where the hemorrhage occured affects mostly coordination and dexterity-type functions, in addition to many of the basic functions he seems to have recovered. If all goes well, we may have a clumsy son. Oh well, we'll take clumsy!

The Hematologist consults us about possible blood disorders and we will begin running tests tomorrow.

Another emotional day, but he came out of surgery well and is breathing over the ventilator quite a bit. Maybe he'll be able to come off it soon...